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Toddler Nirvaan was diagnosed with Spinal Muscular Atrophy (SMA), a rare genetic disorder. Doctors informed his parents that the treatment would cost about Rs 17.5 crore, as they have to procure a costly one-time drug.
The teenage girl had appealed to the world in July last year seeking help to raise money for her brother to procure a dose of Zolgensma, worth over Rs 18 crore.
Veena George said the medicines were bought through crowd-funding while the treatment was facilitated by the government.
She succumbed to her injuries at a private hospital in Kochi on Sunday.
In the study, researchers examined the walking movements that cannot be seen by the naked eye in 189 people to detect nervous system disorders.
The woman was found to be suffering from Marfan syndrome, a rare inherited disorder that affects connective tissue and organs such as the heart, eyes, blood vessels, and bones.
Alex Greenwich, a lawmaker from an independent group that pushed the bill, thanked his colleagues for their support for what he termed as a historic reform.
People with mutation of the COMT gene are more vulnerable to the effects of stress in their early lives.
This is a request is from the children, affected by this rare disease, those who are fighting their last-ditch battle to keep themselves alive.
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